Study of Burden Among Caregivers of Children with Cleft Lip and Palate


  • Ana Paula Ribeiro Razera Universidade de São Paulo
  • Armando dos Santos Trettene Universidade de São Paulo
  • Maria de Lourdes Merighi Tabaquim Universidade de São Paulo
  • Ana Vera Niquerito Universidade de São Paulo



caregivers, family relations, children, cleft lip, cleft palate


The psychological and physical health of caregivers of children with cleft lip and palate can be strongly influenced by the child’s condition and behavior, and care required by the treatment. This study’s objective was to identify overload levels among these caregivers. A total of 100 caregivers, whose children were in the perioperative period of cheiloplasty and/or palatoplasty, were interviewed using the Scale Burden Interview. The data were analyzed quantitatively. Moderate and moderate severe burden levels were identified in 43% of the sample. The mothers of children aged around 12 months presented significantly higher overload. The results indicate that children in this developmental stage present greater care demand because they seek autonomy in locomotion, explore objects in their surrounding environment, and continually request communicative and affective-social interaction with their reference to greater attachment (the caregiver), which may have contributed to higher burden.


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How to Cite

Razera, A. P. R., Trettene, A. dos S., Tabaquim, M. de L. M., & Niquerito, A. V. (2017). Study of Burden Among Caregivers of Children with Cleft Lip and Palate. Paidéia (Ribeirão Preto), 27(68), 247-254.