Towards equity in the Brazilian health system: the case of sickle cell disease

Abstract

Equity is a principle of justice and social equality. The concept has been employed within the Brazilian public health system to care for different individuals according to their needs. Implementation is difficult and complex, involving the commitment of professionals and the organization of the health system. The investigation of sickle cell disease in the population is the result of social struggle in favor of fair and equal treatment, signed in 2001 by the National Newborn Screening Program (NNSP). The study aims to recognize the NNSP for sickle cell disease as an action that respects the principle of equity in the Brazilian health system. The goal of NNSP is to identify, treat and prevent complications of the disease early, watching and guiding the individual patient, family and society regardless of their physical characteristics and social status. It is the representation of the social forces in favor of a public health which preserves fairness as a pillar of the system.