Educação de pacientes com esclerodermia sistêmica: relato de cartilha
DOI:
https://doi.org/10.11606/issn.2317-0190.v28i2a181801Palavras-chave:
Escleroderma Sistêmico, Terapia Ocupacional, Autocuidado, Materiais Educativos e de Divulgação, Educação de Pacientes como AssuntoResumo
Objetivo: Este estudo visou descrever o desenvolvimento e distribuição online de uma cartilha educativa para pacientes com esclerodermia sistêmica com foco em orientações da terapia ocupacional. Métodos: A metodologia de pesquisa-ação foi aplicada e dividida em cinco etapas: análise das solicitações dos pacientes, elaboração do conteúdo, escolha das ilustrações e do projeto gráfico, aprovação dos autores da cartilha educativa e distribuição online. Resultados: Foi desenvolvida a cartilha educativa intitulada "Orientações da Terapia Ocupacional para Pessoas com Esclerose Sistêmica" e sua distribuição online atingiu quase 5.000 pessoas. Conclusão: Os materiais educativos constituem recurso útil no tratamento de doenças crônicas, como a esclerodermia sistêmica. A distribuição online desses materiais expande seu alcance entre os pacientes.
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