(Un)receptiveness in interactions with professionals: experiences of parents of children with retinopathy of prematurity

  • Beatriz Castanheira Facio Universidade Federal de São Carlos
  • Bruna de Souza Lima Marski Universidade Federal de São Carlos
  • Ieda Harumi Higarashi Universidade Estadual de Maringá
  • Maira Deguer Misko Universidade Federal de São Carlos
  • Aline Oliveira Silveira Universidade de Brasília
  • Monika Wernet Universidade Federal de São Carlos
Keywords: Retinopathy of Prematurity, Parents, Professional-Family Relations, Neonatal Nursing, User Embracement

Abstract

OBJECTIVE To analyze the influence of health professionals' receptiveness on parental care of children with retinopathy of prematurity (ROP). METHOD A qualitative study developed under the theoretical framework of Symbolic Interactionism and using a narrative research methodology. Six women and three men, being parents of children with retinopathy of prematurity were individually interviewed in depth. RESULTS From the scope of information, emotions and their rights, the parents experienced receptiveness from some professionals and unreceptiveness from others. The predominance of unreceptive attitudes in the parental narratives originated the following analysis themes: Informational (un)receptiveness, Emotional (un)receptiveness, and (Un)receptiveness of rights. CONCLUSION The study supports human and comprehensive healthcare in the context of retinopathy of prematurity by pointing out the interactive process with health professionals as a potential stressor of parental care. The results signal a nuclear of attitudinal changes and reinforce challenges to the child and family-centered approach.

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Published
2016-12-01
How to Cite
Facio, B., Marski, B., Higarashi, I., Misko, M., Silveira, A., & Wernet, M. (2016). (Un)receptiveness in interactions with professionals: experiences of parents of children with retinopathy of prematurity. Revista Da Escola De Enfermagem Da USP, 50(6), 913-921. https://doi.org/10.1590/s0080-623420160000700006
Section
Original Article