Participating in a sport therapy program: perception of parents of children with cerebral palsy

Authors

  • Marina de Brito Brandão Universidade Federal de Minas Gerais
  • Guilherme Maia Sette Câmara Associação Mineira de Reabilitação
  • Márcio Cançado Valadares Ribeiro Associação Mineira de Reabilitação
  • Marisa Cotta Mancini Departamento de Terapia Ocupacional

DOI:

https://doi.org/10.11606/1807-5509201800020243

Keywords:

Adapted sport, Children with disabilities, Qualitative study, Caregivers, Rehabilitation

Abstract

The aim of the study was to understand the perception of parents of children with cerebral palsy with severe motor impairments, regarding children’s participation in activities at an adapted sport program at Associação Mineira de Reabilitação (AMR). A qualitative study was conducted with twelve caregivers of children with cerebral palsy with severe motor impairments. The children took part, weekly, on the adapted sport program at AMR. Semi-structured interviews with children’s caregivers were performed and they encompassed questions related to caregivers’ expectations regarding the services and the understanding about the proposed activities, positive and negative aspects related to children’s participation, observed possible children’s changes after the beginning of the sport program and suggestions to improve services. The interviews were transcribed and analyzed through content analysis. Three thematic categories were found: (1) Sport, rehabilitation or socialization through play?; (2) Facilitators and barriers of participation at the sport program; (3) Socialization, behavior and movement. Families reported that the children’s participation in the adapted sport program led to improvements on children’s motor, behavior and social skills. The relationship between instructors and children and their families seem to be an important element to promote children’s participation in the proposed activities. Such information can subside the use of sport activities in rehabilitation services for children with disabilities.

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References

Verschuren O, Wiart L, Hermans D, Ketelaar M. Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. J Pediatr. 2012;161:488-94.

Zwier JN, Van Schie PE, Becher JG, Smits DW, Gorter JW, Dallmeijer AJ. Physical activity in young children with cerebral palsy. Disabil Rehabil. 2010;32:1501-8.

Carroll KL, Leiser J, Paisley TS. Cerebral palsy: physical activity and sport. Cur Sports Med Rep. 2006;5:319-22.

Chawla JC. Sports for people with disability. BMJ.1994;308:1500-4

Strapasson AM, Duarte E. Proposta de ensino polybat para pessoas com paralisia cerebral. Arq Ciênc Saúde UNIPAR. 2006;10:165-75.

Labrocini RHDD, Cunha MCB, Oliveira ASB, Gabbai AA. Esporte como fator de integração do deficiente físico na sociedade. Arq Neuropsiq. 2000;58:1092-9.

Maiano C, Ninot G, Morin AJS, Bilard J. Effects of sport participation on the basketball skills and physical self of adolescents with conduct disorders. Adapt Phys Activ Q. 2007;24:178-96.

Hein V, Hagger MS. Global self-steem, goal achievement orientations, and self-determined behavioral regulations in a physical education setting. J Sports Sci. 2007;25:149-59.

Wind WM, Schwend RM, Larson J. Sports for physically challenged child. J Am Acad Orthop Surg. 2004;12:126-37.

Peungsuwan P, Parasin P, Siritaratiwat W, Prasertnu Y, Yamauchi J. Combined exercise training on functional performance in children with cerebral palsy: a randomized-controlled trial. Pediatr Phys Ther. 2017;29:39-46.

Verschuren O, Ketelaar M, Gorter JW, Helders PJ, Uiterwaal CS, Takken T. Exercise training program in children and adolescents with cerebral palsy: a randomized controlled trial. Arch Pediatr Adolesc Med. 2007;161:1075-81.

Unnithan VB, Katsimanis G, Evangelinou C, Kosmas C, Kandrali I, Kellis E. Effect of strength and aerobic training in children with cerebral palsy. Med Sci Sports Exerc. 2007; 39:1902-9.

Slaman J, Van Den Berg-Emons HJ, Van Meeteren J, Twisk J, Van Markus F, Stam HJ, et al. A lifestyle intervention improves fatigue, mental health and social support among adolescents and young adults with cerebral palsy: focus on mediating effects. Clin Rehabil. 2015;29:717-27.

Van Wely L, Balemans AC, Becher JG, Dallmeijer AJ. The effectiveness of a physical activity stimulation programme for children with cerebral palsy on social participation, self-perception and quality of life: a randomized controlled trial. Clin Rehabil. 2014;28:972-82.

Block M, Obrusnikova I. Inclusion in physical education: a review of the literature from 1995-2005. Adapt Phys Activ Q. 2007;24:103-24.

Samalot-Rivera A, Porretta DL. Perceptions and practices of adapted physical educators on the teaching of social skills. Adapt Phys Activ Q. 2009;26:172-86.

Coates J, Wickerman P. Empowering children with special educational needs to speak up: experiences of inclusive physical education. Dis Rehab. 2010;32:1517-26.

Tsai EH, Fung L. Parents experiences and decisions on inclusive sport participation of their children with intelectual disabilities. Adapt Phys Activ Q. 2009;26:151-71.

Columna L, Pyfer J, Senne T, Velez L, Bridenthrall N, Canabal MY. Parental expectations of adapted physical educators: a Hispanic perspective. Adapt Phys Activ Q. 2008;25:228-46.

Palisano RJ. Physical activities of children with cerebral palsy: what are the considerations? Dev Med Child Neurol. 2012;54:390-1.

Souza PA. Esporteterapia como indutora da neuroplasticidade na paralisia cerebral. In: Lima CLA, Fonseca LF. Paralisia cerebral: neurologia, ortopedia e reabilitação. Rio de Janeiro: Guanabara Koogan; 2004. p. 421-30.

Wilding C, Whiteford G. Phenomenological research: an exploration of conceptual, theoretical, and practical issues. OTJR. 2005;25:98-104.

Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39:214-23.

Fontanella BJB, Ricas J, Turato ER. Amostragem por saturação em pesquisas qualitativas em saúde: contribuições teóricas. Cad Saúde Pública. 2008;24:17-27.

Haguette TMF. Metodologias qualitativas na sociologia. Petrópolis, Vozes: 2000.

Rocha D, Deusdara B. Análise de conteúdo e análise do discurso: aproximações e afastamentos na (re)construção de uma trajetória. ALEA. 2005;7:305-22.

Bardin, L. B. Análise de conteúdo. São Paulo: Martins Fontes; 1997.

Palisano RJ, Chiarello LA, Orlin M, Oeffinger D, Polansky M, Maggs J, et al. Determinants of intensity of participation in leisure and recreational activities by children with cerebral palsy. Dev Med Child Neurol. 2011;53:142-9.

Published

2018-12-20

Issue

Section

Articles

How to Cite

Brandão, M. de B., Câmara, G. M. S., Ribeiro, M. C. V., & Mancini, M. C. (2018). Participating in a sport therapy program: perception of parents of children with cerebral palsy. Brazilian Journal of Physical Education and Sport, 32(2), 243-252. https://doi.org/10.11606/1807-5509201800020243