Independence of children with Down syndrome: the experiences of families

Authors

  • Michelle Darezzo Rodrigues Nunes Universidade Federal de São Carlos; Departamento de Enfermagem
  • Giselle Dupas Universidade Federal de São Carlos; Departamento de Enfermagem

DOI:

https://doi.org/10.1590/S0104-11692011000400018

Keywords:

Down Syndrome, Family Nursing, Pediatric Nursing

Abstract

This study develops a theoretical model concerning the experience of families of children with Down syndrome in preschool and school age. The frameworks used were Symbolic Interactionism and Grounded Theory. Semi-structured interviews were used as the instrument of investigation and ten families participated in the study. The Theoretical Model "Seeking the child's independence and autonomy through constant stimulation" was identified, which shows the family's efforts to enable the child to develop the best s/he can through stimulation in order to become less dependent in the future. This model can be used to facilitate interaction with the family and can be further expanded. Nurses should use spaces dedicated to care delivery to establish bonds with the family, and seek other spaces families frequent, to better meet their needs, since there are significant gaps in care and research addressing this population. Instead, they should be welcomed and seen as a partner in care delivery.

Downloads

Download data is not yet available.

Downloads

Published

2011-08-01

Issue

Vol. 19 No. 4 (2011)

Section

Editorial

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Independence of children with Down syndrome: the experiences of families . (2011). Revista Latino-Americana De Enfermagem, 19(4), 985-993. https://doi.org/10.1590/S0104-11692011000400018