Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury

Authors

  • Paula Cristina Nogueira Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto
  • Soraia Assad Nasbine Rabeh Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto
  • Maria Helena Larcher Caliri Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto
  • Rosana Aparecida Spadoti Dantas Universidade de São Paulo; Escola de Enfermagem de Ribeirão Preto
  • Vanderlei José Haas Universidade Federal do Triângulo Mineiro

DOI:

https://doi.org/10.1590/S0104-11692012000600006

Keywords:

Quality of Life, Caregivers, Spinal Cord Injuries, Activities of Daily Living

Abstract

OBJECTIVE: to analyze the impact and burden of care on the Health-Related Quality of Life (HRQOL) of caregivers of individuals with a spinal cord injury (SCI). METHOD: cross-sectional observational study carried out by reviewing medical records and applying questionnaires. The scale Short Form 36 (SF-36) was used to assess HRQOL and the Caregiver Burden Scale (CBScale) for care burden. Results were analyzed quantitatively. Most patients with SCIs were male, aged 35.4 years old on average, with a predominance of thoracic injuries followed by cervical injuries. Most caregivers were female aged 44.8 years old on average. RESULTS: tetraplegia and secondary complications stand out among the clinical characteristics that contributed to greater care burden and worse HRQOL. Association between care burden with HRQOL revealed that the greater the burden the worse the HRQOL. CONCLUSION: Preventing care burden through strategies that prepare patients for hospital discharge, integrating the support network, and enabling access to health care services are interventions that could minimize the effects arising from care burden and contribute to improving HRQOL.

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Published

2012-12-01

Issue

Vol. 20 No. 6 (2012)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Burden of care and its impact on health-related quality of life of caregivers of individuals with spinal cord injury . (2012). Revista Latino-Americana De Enfermagem, 20(6), 1048-1056. https://doi.org/10.1590/S0104-11692012000600006