Suffering eases over time: the experience of families in the care of children with congenital anomalies

Authors

  • Cristiana Araújo Guiller Universidade Federal de São Paulo; Hospital São Paulo
  • Giselle Dupas Universidade Federal de São Carlos
  • Myriam Aparecida Mandetta Pettengill Universidade Federal de São Paulo

DOI:

https://doi.org/10.1590/S0104-11692009000400010

Keywords:

nursing, congenital abnormalities, child, family

Abstract

This study aimed to understand the experience of caring for a child with a congenital anomaly from the family's perspective. Symbolic Interactionism and Grounded Theory were the theoretical and methodological references, respectively. Data collection was carried out with eight families with children having congenital anomalies through semi-structured interviews and participating observation. Data analysis reached axial coding. Results revealed two phenomena in the experience of families in delivering care to children with congenital anomalies - Facing an initially difficult experience and suffering eases over time. We concluded that the understanding of this experience supports the need to reconsider the nursing care provided to families in the care of children with congenital anomalies.

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Published

2009-08-01

Issue

Vol. 17 No. 4 (2009)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Suffering eases over time: the experience of families in the care of children with congenital anomalies. (2009). Revista Latino-Americana De Enfermagem, 17(4), 495-500. https://doi.org/10.1590/S0104-11692009000400010